Saturday, December 20, 2014

December 12th Brylee Update:

Brylee only has a couple more days of Chemo left in this cycle and has already received some very special visitors. The first night of this round started a little rough with a low grade fever and some nausea and vomiting but the next few nights have gone much better. She even slept in this morning snuggled up with her mom and dad right by her side. As before, Brylee is handling all of this with humor, feistiness, and strength that puts a lump in our throats and brings us to tears. There are no words to express how thankful we are for that and for all who are supporting her and the family in so many ways. Your love and kindness have been such a blessing in this whirlwind of emotions. To all who have reached out with calls, texts, meals, visits, running errands, and just being "present", we Thank You! Through the grace of God we will get through this. Please keep praying for Brylee, Zayden and Rob and Monica. As Christmas approaches, we will pray for all of you as well. We will pray for peace, comfort, health, and that you feel the love of Christ, knowing that through him we will all find peace and rest.

Tuesday, December 16, 2014

Be The Match Donor Drive is in the Works

Please don't forget to take time out of your day to lift Brylee and her parents up in your prayers.  Please read the below update, and please consider being a part of the "Be The Match" donor drive that is in the works.  Being a part of this donor drive is a very practical and direct way that you can be helping Brylee in her fight:

"As the sun rises this morning and another day full of emotions begins, we are trying to focus on being thankful. Most of the last few days "Thankful" was not the emotion that was taking center stage, but today in the midst of heartbreak, we are trying to be thankful. Not for what is, that we cannot control, but for Brylee's strength and for all of you who have rallied around her to once again to support her and her family in this battle. Brylee is admitted now and beginning Chemotherapy again and handing all of this like a true champion. Every day brings frustration, anger, sadness and fear...but today we are reminded of the kindness and generosity of others. We are so thankful for such amazing friends and family and the support of so many that have never even met Brylee. There are still a lot of decisions to be made and plans change by the day, but a repeated question by many is, "How can I help? Where can I donate blood or become part of the bone marrow registry?". That is what we are thankful for. The reality is that the likelihood of a match being found by a family member or friend here in Boise for Brylee is slim. But, YOU could be a match for a child just like her somewhere else waiting for a donor and hoping that someone will be able to help. There have been some posts and emails about joining Be The Match and that is a great option as well as Delete Blood Cancer and a few others. They both can send a kit directly to your house and you swab your cheek and send it back with no cost to you, but there is another option that a new friend has brought to our attention. There is a bone marrow "drive" that the director of Be The Match is flying in for the end of January and she would like to do this in honor of Brylee. The details are still in the planning stages and we will keep everyone updated as they come about, but for now you can know that we are working on making this an easy way for all who want to help to come get their cheeks swabbed and support Brylee. The date of the event, as we learn more about it, will be posted here and Rob and Monica are trying to keep everyone updated the best they can, but their attention right now is on thier sweet girl and surrounding her with love and comfort. Again, please know that we are so thankful for all of you and trust that God will heal Brylee once again."

Sunday, December 14, 2014

Heavy Hearts, Prayers Needed for Brylee and Her Family

It is with a heavy heart today that I am posting an update. Sadly, we learned through Brylee's recent visit to the hospital with some facial paralysis and a terrible ear infection that her Leukemia has returned. While she was under anesthesia for her surgery to relieve the pressure on her facial nerve from her ear infection, they did a bone marrow biopsy and discovered the Leukemia is back. Her blood samples, so far, were still looking clear at her most recent visits, and her MRI results don't show any tumors on her brain or spine, to which we are extremely thankful. Because of the rapid growth of her last tumors, the doctors are moving quickly to begin her treatment and again achieve remission. Brylee went to St. Luke's Children's Hospital this morning to have a long term port (Hickman) placed for her IV access over the next few months of treatment. She will begin Chemotherapy again tomorrow and will be in the hospital for the next little while. This time will be a little different, as Brylee will undergo 1-3 cycles of Chemo to achieve remission, then she will need to go to a bigger hospital (still to be determined) for a bone marrow transplant. As you can imagine, there are a lot of decisions to make, a lot of plans up in the air, and a completely heartbroken family trying to navigate through this process. Please know that each text, call, message and prayer are received and appreciated, but there is so much to be done, it is hard to respond to them all. Brylee is a fighter and shows such strength through all of this, that we will continue to be prayerful for quick remission, an exact bone marrow match, and ultimately, a complete recovery. Many have asked what they can do to help, and at this time, all we can ask you to do is pray. Pray for Brylee to have grace and peace and to not be afraid. Pray for Rob and Monica to have strength. Pray for Zayden to understand something that the rest of us don't and to not lose faith in our loving God who will see us through this. As time moves on, we will give information to those of you who wish to be on the Bone Marrow registry, for not only Brylee, but any other person who finds themselves in the midst of this battle. Thank you all for your love, and we will try to keep you updated the best we can. We keep reminding ourselves, "We can do all things through Christ who gives us strength". Philippians 4:13

Wednesday, December 10, 2014

Thankful For This News:

This afternoon, lots of thankful hearts. Thank you for your prayers today. Here's some good news from Brylee's folks:

"Thank you all for your prayers, kind words and thoughts this morning. Brylee underwent blood work and an MRI of the brain and spine today emergently after waking up with a right side paralysis of her face. Everything was negative for any return of Cancer, thank goodness!!! She has a major sinus and inner ear infection causing Bell's Palsy (the face paralysis). Unusual, but something that they see when a facial nerve gets impinged. We are so grateful for something that appears to be minor in the grander scope of her history. She is at home resting after the unplanned excitement today and we are hopeful antibiotics will clear up the infection. If not, we may need a minor surgery to assist the drainage. We are grateful to have a team behind our warrior! Thank you."

Rob and Monica

Update on Brylee:

Thank you all for the prayer. Brylee woke up with paralysis on the right side of her face. They are doing an emergent MRI of the brain and spine and we are waiting now. They expected it to take a couple of hours before we would see her and know anything. She is strong and we know we are in good hands. Praying for strength and comfort as the day progresses.

Please pray for Brylee!

Please take a moment right now and say a prayer for Brylee. We don't know any details, but know she is headed to the ER and needs our prayers.