For those of you who love Lula and are keeping her in your continual prayers, here are some recent updates that her mother has provided these past few days. Now, more than ever, Lula and her wonderful family need your prayers, love and support. Please keep this family continually close to you moment-to-moment through prayer.
Lula, we love your smile, your kind and giving heart, your never-give-up attitude, your care free spirit. You are the strongest person most of us will ever have the privilege to meet, and you are undoubtedly a hero to so many of us. We love you so much, Lula!:
Monday, July 22, 2013
"UPDATE: Hey everybody - thanks for your patience with the update. Lu's surgery started (officially) at 8:15 this morning. It was scheduled for 4.5 hrs, but the doc anticipated a 2-2.5 hr surgery. Instead, we didn't get to see her until about 3:00.
The doctors were able to remove the tumors, but there were complications. Due to all the radiation therapy Lu has received, her lungs are not a normal consistency & they were "stuck" to the sides of the lung cavity, in a few cases, and, unfortunately stuck up against her heart, as well. The team was able to get out the tumors and took a bit of the pericardium (the sac that contains the heart), and the lung wall for biopsy. We should get those results on Wednesday.
We will have another scan, but doc hasn't decided when because they want to wait the optimal amount of time to be able to clearly view the lung, post surgery. At this point, nobody is talking about this being curative. However, neither is anyone able to say "this much time" or "that much time".
Worst case scenario - a tumor grows in just the wrong spot and she leaves us *very* quickly: super quick - 6 months. Less worst case scenario - things keep growing but we're able to pluck them out or keep them at bay for a while: a few years. Best case scenario - these two tumors are cut out and the cancer stays gone (please please please).
So, we wait. And we hope. And we pray. And we eat organic. And we do a lot of juicing and take our vitamins. And we ride our horses.
We're in the PICU tonight - should be on the regular floor tomorrow, depending on the air drainage from her lung. Please pray. Everybody. We still have time for a modern day miracle."
Tuesday, July 23, 2013
"Lula's back is achy today - mostly because the chest tube that is draining fluid & extra air from her chest cavity runs along a nerve that can cause back pain. They are trying to increase her epi meds, because she HATES anything like morphine. This girl does not love medicine. Please pray her some comfort today."
Wednesday, July 24, 2013
"UPDATE: We got the biopsies back today. The lung wall was clear, but I'm sorry to
report that the pericardium came back cancerous. I would love to answer all your questions about what we're doing next, but I have no idea yet. Please keep us in your prayers. to you all."
Today - Friday, July 26, 2013
"UPDATE: There is still a bubble in Lu's chest cavity. She will being going back into the PICU today - she has to be sedated and have her chest tube "adjusted". They are trying to get that bubble to rise up and get out of her. She is not happy about this. The kid needs to catch a break."